Kucher A, Gaitán C, Skinner M, Cruz M, Escobar A, Alfonso O, Iorio A, germini F, Parrish R, Sevestre M. LR-07.01 (1160466) Integration of the Mexican Registry of Coagulopathies (RMC) with PROBE. (2022), Abstracts. Haemophilia, 28: 5-97. https://doi.org/10.1111/hae.14537 Introduction Registro Mexicano de Coagulopatías (RMC) is a national registry app connected to the Federation of Hemophilia of the… Continue reading Integration of the Mexican Registry of Coagulopathies (RMC) with PROBE
Author: Alexandra Kucher
Changing community needs for those with a Bleeding Disorder in Poland
Gajewski B, Sumera A, Kaczmarek R, Kucher A, Noone D, Page D, Skinner M. PP-75 (1160578) Changing community needs for those with a bleeding disorder in Poland. (2022), Abstracts. Haemophilia, 28: 5-97. https://doi.org/10.1111/hae.14537 Introduction Treatment and care have improved for those with a bleeding disorder(BD) in Poland. There is a generation who is ageing and a… Continue reading Changing community needs for those with a Bleeding Disorder in Poland
Feasibility of integrating PROBE (Patient Reported Outcomes, Burdens and Experiences) into a clinical care pathway to facilitate transformation to a Value-Based Health Care Model in hemophilia
Jackson S, Sheridan B, Due D, Lyons S, Waines R, Ireland T, Pete D, Iorio A, Walsh L, Skinner M, Germini F. F. PP-60 (1160288) Feasibility of integrating PROBE (patient reported outcomes, burdens and experiences) into a clinical care pathway to facilitate transformation to a value-based health care model in haemophilia. (2022), Abstracts.Haemophilia, 28: 5-97.… Continue reading Feasibility of integrating PROBE (Patient Reported Outcomes, Burdens and Experiences) into a clinical care pathway to facilitate transformation to a Value-Based Health Care Model in hemophilia