Curtis R, Wu J, Iorio A, Nichol M, Germini F, Kucher A, Skinner M. Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study. (2023), POSTER ABSTRACTS (PO077). Haemophilia, 29: 24-202. https://doi.org/10.1111/hae.14715 Objective To investigate the test-retest reliability of the PROBE questionnaire mobile application (MyPROBE). Methods People with hemophilia (PWH) including carriers… Continue reading Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study
Tag: EAHAD
Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE
Kucher A, Clearfield E, Germini F, Dubé E, Merlen C, Bonnefoy A, St-Louis J, Rivard G.E, Skinner M. Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE.(2023), POSTER ABSTRACTS (PO177). Haemophilia, 29: 24-202. https://doi.org/10.1111/hae.14715 Introduction Emicizumab for treatment of people with severe hemophilia A (SHA) was recently approved by… Continue reading Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE
Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study. Poster Presentations #P204 Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666… Continue reading Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study
Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort
Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort. Poster Presentations #P080. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Introduction For people with severe haemophilia, acute and chronic pain is often… Continue reading Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort
Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study
Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study. Poster Presentations #P079. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Background Acute and chronic pain as well as the potential access to medications,… Continue reading Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study
Development and testing of the online probe survey and the myPROBE app and integration with the Canadian bleeding disorder registry
Germini F, Borg Debono V, Page D, Skinner MW, Zuk V, Kucher A, Sevestre M, Iorio A, on behalf of PROBE investigators. Development and testing of the online probe survey and the myPROBE app and integration with the Canadian bleeding disorder registry. Abstract P097. Haemophilia. 2020;26(S2):27-181. https://doi.org/10.1111/hae.13911 Introduction Advances to support accessibility and robust data… Continue reading Development and testing of the online probe survey and the myPROBE app and integration with the Canadian bleeding disorder registry
