Curtis R, Wu J, Iorio A, Nichol M, Germini F, Kucher A, Skinner M. Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study. (2023), POSTER ABSTRACTS (PO077). Haemophilia, 29: 24-202. https://doi.org/10.1111/hae.14715 Objective To investigate the test-retest reliability of the PROBE questionnaire mobile application (MyPROBE). Methods People with hemophilia (PWH) including carriers… Continue reading Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study
Author: Alexandra Kucher
Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE
Kucher A, Clearfield E, Germini F, Dubé E, Merlen C, Bonnefoy A, St-Louis J, Rivard G.E, Skinner M. Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE.(2023), POSTER ABSTRACTS (PO177). Haemophilia, 29: 24-202. https://doi.org/10.1111/hae.14715 Introduction Emicizumab for treatment of people with severe hemophilia A (SHA) was recently approved by… Continue reading Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE
A Comparative Study of Different Methods of Handling Missing Data in Patient Reported Outcomes, Burdens and Experiences (PROBE) Score Algorithm among People with Hemophilia
Ibrahim Q, Iorio A, Curtis R, Nichol M, Noone D, Stonebraker J, Skinner M, Germini F, and the PROBE investigators. A Comparative Study of Different Methods of Handling Missing Data in Patient Reported Outcomes, Burdens and Experiences (PROBE) Score Algorithm among People with Hemophilia. THSNA 2022. Background The patient reported outcomes, burdens and experiences (PROBE)… Continue reading A Comparative Study of Different Methods of Handling Missing Data in Patient Reported Outcomes, Burdens and Experiences (PROBE) Score Algorithm among People with Hemophilia
Exploring Regional Variations in the Cross‐cultural, International Implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) Study
Chai‐Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Stonebraker J, Iorio, A, Skinner MW. Exploring Regional Variations in the Cross‐cultural, International Implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) Study. Abstract PB189. Res Pract Thromb Haemost. 2018;2(S1):1-368. https://doi.org/10.1002/rth2.12125 Background The Patient Reported Outcomes Burdens and Experience (PROBE)… Continue reading Exploring Regional Variations in the Cross‐cultural, International Implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) Study
The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation (Abstract). NHF (2019). Objectives The health status of… Continue reading The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation
Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire (Abstract). HAAB (2019). Introduction The interest of health care… Continue reading Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire
Comparison of the Measurement Properties of the PROBE and EQ5D on Pain
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Comparison of the Measurement Properties of the PROBE and EQ5D on Pain [Oral Presentation]. HTAi (2019). Background The Patient Reported Outcomes,… Continue reading Comparison of the Measurement Properties of the PROBE and EQ5D on Pain
Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study. Poster Presentations #P204 Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666… Continue reading Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study
Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort
Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort. Poster Presentations #P080. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Introduction For people with severe haemophilia, acute and chronic pain is often… Continue reading Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort
Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study
Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study. Poster Presentations #P079. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Background Acute and chronic pain as well as the potential access to medications,… Continue reading Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study
