Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation (Abstract). NHF (2019). Objectives The health status of… Continue reading The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation
Tag: NHF
Aging and health status in persons leaving with hemophilia and controls without a bleeding disorder
Germini F, O’Callaghan S, Chai-Adisaksopha R, Curtis R, Frick N, Nichol M, Noone D, O’Mahony B, Page D, Stonebraker J, Skinner M, Iorio A. Aging and health status in persons leaving with hemophilia and controls without a bleeding disorder. Abstract (20). NHF 2022. Objective People with hemophilia (PWH) have a life expectancy disadvantage as compared… Continue reading Aging and health status in persons leaving with hemophilia and controls without a bleeding disorder
