Publications 2020

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Abstracts

World Federation of Hemophilia Congress (2020)

Poster Abstract # MTD‐PP‐025 (377)

3 apps in 1: MyCBDR, myWAPPS and myPROBE

Citation: Page D, 3 apps in 1: MyCBDR, myWAPPS and myPROBE. (2020), Abstracts. Haemophilia, 26: 3-140. doi:10.1111/hae.13941

For Abstract Click HERE (MTD‐MP‐025 (377))

Poster Abstract # MTD‐PP‐045 (548)

 

Education in people with Hemophilia – Insights from the PROBE Study

Citation: Kucher A, Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Iorio A, Nichol M, O'Mahony B, Page D, Skinner M, Stonebraker J. Education in people with Hemophilia – Insights from the PROBE Study (2020), Abstracts. Haemophilia, 26: 3-140. doi:10.1111/hae.13941

For Abstract Click HERE (MTD‐MP‐045 (548))

 

International Society on Thrombosis & Haemophilia (ISTH, SSC) 2020

Poster Abstract # PB 1012

Association between ageing and health status in persons leaving with hemophilia and controls without a bleeding disorder

Citation: Germini F, O'Callaghan S, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, Noone D, O'Mahony B, Page D, Stonebraker J, Skinner M, Iorio A. Association Between Aging and Health Status in Persons Leaving with Hemophilia and Controls Without a Bleeding Disorder – Insights from the PROBE Study [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1).

For Abstract Click HERE (PB 1012)

Poster Abstract # PB 1005

Non-Severe Hemophilia Is Not Benign? – Insights from the PROBE Study

Citation: Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, Noone D, Germini F, O'Mahony B, Page D, Stonebraker J, Skinner M, Iorio A. Non-Sever Hemophilia Is Not Benign? – Insights from the PROBE Study [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1).

For Abstract in press Click HERE (PB 1005)

Poster Abstract # PB 0981

 

Impact of Switching to Prophylaxis with Recombinant Factor IX Fc Fusion Protein Concentrate on Patient Reported Outcomes in People with Haemophilia B Using the PROBE Questionnaire

Citation: O'Donovan M, Johnston K, Singleton E, Benson J, Ryan K, O'Connell N. Impact of Switching to Prophylaxis with Recombinant Factor IX Fc Fusion Protein Concentrate on Patient Reported Outcomes in People with Haemophilia B Using the PROBE Questionnaire [abstract]. Res Pract Thromb Haemost. 2020; 4 (Suppl 1).

For Abstract Click HERE (PB0981)

European Association for Haemophilia and Allied Disorders (EAHAD) 2020

Abstract #EAHAD20-ABS-1221

Development and testing of the myPROBE app and integration with the Canadian Bleeding Disorder Registry

Citation: Germini F; Debono V; Page D; Skinner M; Zuk V; Kucher A; Sevestre M; Iorio A and on behalf of Patient Reported Outcomes Burdens and Experiences (PROBE) Investigator Group, EAHAD (2020), Poster Presentations. https://onlinelibrary.wiley.com/doi/10.1111/hae.13911

For Abstract Click: HERE (P097)