Assessment of quality of life of patients in Kyrgyzstan using the PROBE tool

Vizcaya D, Torres L, Peñuela O, Forero MDR, Rivera M, Franco J-S. Characteristics and Self‐Reported Outcomes of Children and Adults with Severe Hemophilia A from Colombia Tool. Abstract 060. Haemophilia. 2021;27(S2):18-181. https://doi.org/10.1111/hae.14236 Introduction In resource constrained countries such as the Kyrgyz Republic, there is very limited availability of clotting factor concentrates which has a determinantal… Continue reading Assessment of quality of life of patients in Kyrgyzstan using the PROBE tool

PROBE Results Show Continued Burden of Disease in Canadians with Hemophilia A and B

Page D, Kucher A, Geremini F. PP-72 (1160482) PROBE results show continued burden of disease in Canadians with severe haemophilia A and B. (2022), Abstracts. Haemophilia, 28: 5-97. https://doi.org/10.1111/hae.14537 Introduction Prophylaxis with recombinant factor concentrates has been the standard of care for severe hemophilia A and B in Canada since the early 1990s and has resulted… Continue reading PROBE Results Show Continued Burden of Disease in Canadians with Hemophilia A and B