Original Publications in Peer-Reviewed Journals
Feasibility of Administering the Patient Reported Outcomes, Burdens and Experiences (PROBE) Questionnaire Through the Canadian Bleeding Disorders Registry (CBDR) and Comparison of Data From the Two Sources
F. Germini, C. Cossa, E. Trinari, et al. “ Feasibility of Administering the Patient Reported Outcomes, Burdens and Experiences (PROBE) Questionnaire Through the Canadian Bleeding Disorders Registry (CBDR) and Comparison of Data From the Two Sources.” Haemophilia (2025): . https://doi.org/10.1111/hae.70117
Test-Retest Reliability of a Mobile Application of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study
Curtis R, Wu J, Iorio A, Frick N, Nichol M, Noone D, O'Mahony B, Page D, Stonebraker J, Kucher A, Clearfield E, Skinner MW, Germini F. Test-retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study. Haemophilia. 2024 May;30(3):702-708. doi:10.1111/hae.14969. Epub 2024 Mar 4. PMID: 38439137.
Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study
Curtis R, Wu J, Iorio A, Nichol M, Germini F, Kucher A, Skinner M. Test-Retest Reliability Analysis of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study. Haemophilia 2023; 29: 24-202. https://doi.org/10.1111/hae.14715">https://doi.org/10.1111/hae.14715
User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study
Germini F, Borg Debono V, Page D, Zuk V, Kucher A, Cotoi C, Hobson N, Sevestre M, Skinner MW, Iorio A, PROBE Investigators. JMIR Hum Factors. 2022;9(1):e30797.
https://doi.org/10.2196/30797
Evaluation of the sexual health in people living with hemophilia
Germini, F, Chai-Adisaksopha, C, Pete, D, Curtis, R, Frick, N, Nichol, M, Noone, D, O’Mahony, B, Page, D, Stonebraker, J, Thabane, L, Crowther, M, Skinner, M, Iorio, A. Haemophilia. 2021;27:993-1001. https://doi.org/10.1111/hae.14410
Non-severe haemophilia: Is it benign? – Insights from the PROBE study
Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, Germini F, O’Mahony B, Page D, Stonebraker J, Skinner M, Iorio A. Haemophilia. 2021;27(Suppl.1):17– 24. https://doi.org/10.1111/hae.14105
Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study
Chai‐Adisaksopha, C, Skinner, MW, Curtis, R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Haemophilia. 2019;25:365–372. https://doi.org/10.1111/hae.13703
Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains
Chai‐Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Haemophilia. 2019;25:75–83. https://doi.org/10.1111/hae.13649
Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire
Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. BMJ Open. 2018;8:e021900. http://dx.doi.org/10.1136/bmjopen-2018-021900
The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia
Skinner MW, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, Noone D, O’Mahony B, Page D, Stonebraker JS, Iorio A. Pilot and Feasibility Studies. 2018;4:58. doi: 10.1186/s40814-018-0253-0.
