Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation (Abstract). NHF (2019). Objectives The health status of… Continue reading The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation
Tag: 2019
Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire (Abstract). HAAB (2019). Introduction The interest of health care… Continue reading Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire
Comparison of the Measurement Properties of the PROBE and EQ5D on Pain
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Comparison of the Measurement Properties of the PROBE and EQ5D on Pain [Oral Presentation]. HTAi (2019). Background The Patient Reported Outcomes,… Continue reading Comparison of the Measurement Properties of the PROBE and EQ5D on Pain
Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study
Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study. Poster Presentations #P204 Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666… Continue reading Part-Time Employment and Early Retirement In People With Severe Haemophilia: Insights From The PROBE Study
Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort
Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort. Poster Presentations #P080. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Introduction For people with severe haemophilia, acute and chronic pain is often… Continue reading Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort
Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study
Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study. Poster Presentations #P079. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Background Acute and chronic pain as well as the potential access to medications,… Continue reading Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study
Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire
Skinner M, Chai‐Adisaksopha C, O’Mahony B, Noone D, Curtis R, Frick N, Nichol M, Page D, Stonebraker J, Iorio A. Patient Reported Outcomes Burdens and Experiences Study Group. Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire. Abstract PB1412. Res Pract Thromb Haemost. 2019;3(S1):1-891. https://doi.org/10.1002/rth2.12229 Background A substantial need exists to improve… Continue reading Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire
Patient Reported Outcome Data on Switch from Standard to Extended Half Life in Irish Adults with Haemophilia
O’Mahony B, Pastarnak A, Noone A, Skinner M. Patient Reported Outcome Data on Switch from Standard to Extended Half Life in Irish Adults with Haemophilia. Abstract OC 42.4. Res Pract Thromb Haemost. 2019;3(S1):1-228. https://doi.org/10.1002/rth2.12227 Background From 2017 to the end of 2018, all people with Haemophilia B and the majority with Haemophilia A (PwH) in… Continue reading Patient Reported Outcome Data on Switch from Standard to Extended Half Life in Irish Adults with Haemophilia
Health Status of People Living with Non- severe Hemophilia – Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study
Chai-Adisaksopha C, Skinner MW, Page D, Stonebraker J, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Iorio A, and Patient Reported Outcomes Burdens and Experiences Study Group. Health Status of People Living with Non- severe Hemophilia – Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study. Abstract OC 32.4. Res Pract… Continue reading Health Status of People Living with Non- severe Hemophilia – Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study
Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study
Chai‐Adisaksopha, C, Skinner, MW, Curtis, R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study. Haemophilia. 2019;25:365–372. https://doi.org/10.1111/hae.13703
