The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation

Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation (Abstract). NHF (2019). Objectives The health status of… Continue reading The Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire Development and Validation

Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire

Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire (Abstract). HAAB (2019). Introduction The interest of health care… Continue reading Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire

Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire

Skinner M, Chai‐Adisaksopha C, O’Mahony B, Noone D, Curtis R, Frick N, Nichol M, Page D, Stonebraker J, Iorio A. Patient Reported Outcomes Burdens and Experiences Study Group. Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire. Abstract PB1412. Res Pract Thromb Haemost. 2019;3(S1):1-891. https://doi.org/10.1002/rth2.12229 Background A substantial need exists to improve… Continue reading Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Questionnaire

Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

Chai‐Adisaksopha, C, Skinner, MW, Curtis, R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study. Haemophilia. 2019;25:365–372. https://doi.org/10.1111/hae.13703

Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains

Chai‐Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains. Haemophilia. 2019;25:75–83. https://doi.org/10.1111/hae.13649

Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire. BMJ Open. 2018;8:e021900. http://dx.doi.org/10.1136/bmjopen-2018-021900

The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia

Skinner, M. W., Chai-Adisaksopha, C., Curtis, R., Frick, N., Nichol M., Noone, D., O’Mahony, B., Page, P., Stonebraker, J. S. and Iorio, A. (2018). The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia. Pilot and Feasibility Studies, 2018 4:58. doi: 10.1186/s40814-018-0253-0