Initial results of the impact of valoctocogene roxaparvovec on pain occurrence and interference: Insights from PROBE

Skinner M, Chen E, Kucher A, Germini F, Karimi M, Clearfield E , O’Mahony B , Jain M. Initial results of the impact of valoctocogene roxaparvovec on pain occurrence and interference: Insights from PROBE. (Abstract). NHF (2023). Introduction People with severe haemophilia A (PwSHA) commonly present with intramuscular bleeding and hemarthrosis, leading to acute and chronic… Continue reading Initial results of the impact of valoctocogene roxaparvovec on pain occurrence and interference: Insights from PROBE

Initial results of the impact of valoctocogene roxaparvovec on pain occurrence and interference: Insights from PROBE

Skinner M, Chen E, Kucher A, Germini F, Karimi M, Clearfield E , O’Mahony B , Jain M. Initial results of the impact of valoctocogene roxaparvovec on pain occurrence and interference: Insights from PROBE. (2023), CCS_Book of abstracts. Haemophilia, 29: 3-53. https://doi.org/10.1111/hae.14781 Introduction People with severe haemophilia A (PwSHA) commonly present with intramuscular bleeding and hemarthrosis,… Continue reading Initial results of the impact of valoctocogene roxaparvovec on pain occurrence and interference: Insights from PROBE

Physical functioning and pain in older men with haemophilia

O’Callaghan S, Parikh S, Bishop L, Caris S. Physical functioning and pain in older men with haemophilia. (2024), POSTER ABSTRACT (PP-161). (2024), Issue Information. Haemophilia, 30: 1-2. https://doi.org/10.1111/hae.15016 Introduction It is well recognised that physical functioning can be impaired and pain common as men with haemophilia (MWH) age, due to complications from their bleeding disorder.… Continue reading Physical functioning and pain in older men with haemophilia

Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE

Kucher A, Clearfield E, Germini F, Dubé E, Merlen C, Bonnefoy A, St-Louis J, Rivard G.E, Skinner M. Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE.(2023), POSTER ABSTRACTS (PO177). Haemophilia, 29: 24-202. https://doi.org/10.1111/hae.14715  Introduction Emicizumab for treatment of people with severe hemophilia A (SHA) was recently approved by… Continue reading Impact on Pain and Activities of Daily Living after Switching to Emicizumab: Insight from PROBE

Comparison of the Measurement Properties of the PROBE and EQ5D on Pain

Skinner M, Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A and the Patient Reported Outcomes Burdens and Experiences (PROBE) Study Investigator Group. Comparison of the Measurement Properties of the PROBE and EQ5D on Pain [Oral Presentation]. HTAi (2019). Background The Patient Reported Outcomes,… Continue reading Comparison of the Measurement Properties of the PROBE and EQ5D on Pain

Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort

Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort. Poster Presentations #P080. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Introduction For people with severe haemophilia, acute and chronic pain is often… Continue reading Predictors For Acute And Chronic Pain In Patients With Severe Haemophilia In The PROBE Cohort

Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study

Noone D, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, O’Mahony B, Page D, Pastarnak A, Stonebraker J, Iorio A, Skinner M. Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study. Poster Presentations #P079. Haemophilia. 2019;25(S1):35-188. https://doi.org/10.1111/hae.13666 Background Acute and chronic pain as well as the potential access to medications,… Continue reading Impact of Acute and Chronic Pain on the EQ-5D: Insights From The PROBE Study