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Looking for people with hemophilia
The myPROBE app is a secure platform to complete the PROBE Study and track your PROBE score over time. When you download the app and create an account, your data is anonymously included in the PROBE study database, which currently includes more than 8,000 complete surveys. We suggest completing PROBE once a year. The app will show you how your scores changes over time and allows you to view a personal dashboard compare your score to the scores of other people like you. You can even transmit your PROBE scores to your doctor to talk about at your next visit.
Looking for participants from the general population
People who do not have a bleeding disorder can be part of PROBE too! We use data from participants in the general population to serve as a control group so we can compare quality of life between the two groups. These types of analyses make PROBE a valuable tool to see how different health conditions can impact a person's quality of life.
