Empowering Patients
By elevating the voice of patients, we can better assess the state of care around the world to help patients and patient organizations advocate for and improve their healthcare environments.
We are currently needing to hear from people with a bleeding disorder such as hemophilia. If you are able to help us track your experience, we want to hear from you.
Driving Innovations
The PROBE study is a proven evidence-based methodology that reveals key data and insights about today’s patient experience in 80+ countries.
For the industry, a better understanding of the patient experience can help improve drug development, lower costs, mitigate risk and drive growth. Comprehensive feedback is a powerful tool.
PROBE is a new research tool that prioritizes and amplifies the patient-voice so we can better understand and improve the treatment and care of people around the world.
Why does the patient voice matter?
Patients are experts on living with their condition. Including the patient voice in research can help us define, collect, and report the patient journey more accurately and comprehensively. This patient-centered research allows for “Better Evidence.” It provides the kind of knowledge that:
• empowers patients and patient organizations
• improves outcomes collection
• speeds up the innovation life cycle
• ensures access to new treatments
• improves quality of life for patients
Participating Partners
PROBE is funded with grant / research support from:
