Point of Interest

January 2019

Publication of 2018 has been archived on our website. Visit our publications for new and future releases!

December 2018

Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domain paper has been published in Haemophilia Journal!

November 2018

PART-TIME EMPLOYMENT AND EARLY RETIREMENT IN PEOPLE WITH SEVERE HAEMOPHILIA: INSIGHTS FROM THE PROBE STUDY poster abstract was accepted for presentation at EAHAD in Prague, Czech Republic, from 6-8 February 2019.

PREDICTORS FOR ACUTE AND CHRONIC PAIN IN PATIENTS WITH SEVERE HAEMOPHILIA IN THE PROBE COHORT poster abstract was accepted for presentation at EAHAD in Prague, Czech Republic, from 6-8 February 2019.

IMPACT OF ACUTE AND CHRONIC PAIN ON THE EQ-5D: INSIGHTS FROM THE PROBE STUDY poster abstract was accepted for presentation at EAHAD in Prague, Czech Republic, from 6-8 February 2019.

"Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains and questions" manuscript was accepted for publication in Haemophilia.

 

Recent Publications

January 2019

EAHAD 2019 Abstracts are now available for view, please visit our PUBLICATIONS for more information.

October 24th, 2018

New poster available: Impact of hemophilia on employment - Insights from the PROBE Study

September 22nd, 2018

"Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROVE) questionnaire" article has been published by BMJ Open. Follow the link for more details - Click Other Publications

July 16th, 2018

Looking for PROBE posters or abstracts from ISTH, 2018? Follow the link for more information - Click POSTERS or ABSTRACTS