Point of Interest

April 2019

All three poster abstracts has been accepted for presentation at XXVII Congress of the International Society on Thrombosis and Haemostasis:

Oral Communication Session:

Patient Reported Outcome Data on switch from standard to extended half life in Irish adults with haemophilia

Health status of people living with non-severe hemophilia - Insights from the Patient Reported Outcomes, Burdens and Experiences (PROBE) study

Poster Presentation:

Validation of the Patient Reported Outcomes Burdens and Experiences (PROBE) study questionnaire

March 2019

New article has been published in Haemophilia Journal: Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

January 2019

Publication of 2018 has been archived on our website. Visit our publications for new and future releases!

December 2018

Test-retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains paper has been published in Haemophilia Journal!

 

Recent Publications

January 2019

EAHAD 2019 Abstracts are now available for view, please visit our PUBLICATIONS for more information.

October 24th, 2018

New poster available: Impact of hemophilia on employment - Insights from the PROBE Study

September 22nd, 2018

"Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROVE) questionnaire" article has been published by BMJ Open. Follow the link for more details - Click Other Publications

July 16th, 2018

Looking for PROBE posters or abstracts from ISTH, 2018? Follow the link for more information - Click POSTERS or ABSTRACTS