Randall Curtis has a bachelor of science in genetics and an MBA in computer information systems. He is also a certified Project Management Professional (PMP) by the Project Management Institute and a Microsoft Certified Systems Engineer. Throughout his 33 year career with the State of California in Public Health and Industrial Relations, he as always worked on data collection systems for hemophilia in his spare time. Mr. Curtis has served as the IT Operations Manager for a 1,300 person California Public Health Laboratory, and the Chief Information Security Officer and subsequently as the Chief Enterprise Architect for a labor department of 6,000 employees. Now that he is retired, he devotes his time to collecting data on the Hemophilia Utilization Group Studies (HUGS), the Patient Reported Outcomes, Burdens and Experiences (PROBE) study and the Cost of Hemophilia Socioeconomic Survey (CHESS) projects. Mr. Curtis also serves on several non-profit boards of directors including the Center for Inherited Bleeding Disorders and the Hemophilia Council of California. His policy work includes the American Thrombosis & Hemostasis Network (ATHN) Privacy, Security and Data Access Committee, the National Hemophilia Program Coordinating Center (NHPCC) Advisory Committee, the National Hemophilia Foundation Annual Meeting Planning Committee and the Pacific Sickle Cell Regional Collaborative Policy Working Group.
