Posters and Oral Presentations

Last updated October 2018

 

Bleeding Disorders Conference (NHF 70th) 2018NHF2018

Poster # 076

IMPACT OF HEMOPHILIA ON EMPLOYMENT - INSIGHTS FROM THE PROBE STUDY

Citation:

M.W. Skinner; C. Chai‐Adisaksopha; R. Curtis; N. Frick; A. Iorio; D. Noone; O'Mahony; D. Page; A. Pastarnak; J. Stonebraker; PROBE (2018). Impact of hemophilia on employment - Insights from the PROBE Study. Abstract 076. National Hemophilia Foundation 2018

 

 

International Society on Thrombosis & Haemophilia (ISTH, SSC) ghh2018

Poster # PB189

EXPLORING REGIONAL VARIATIONS IN THE CROSS-CULTURAL, INTERNATIONAL IMPLEMENTATION OF THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

C. Chai‐Adisaksopha; D. Noone; R. Curtis; N. Frick; M. Nichol; B. O'Mahony; D. Page; J. Stonebraker; A. Iorio; M.W. Skinner; PROBE (2018). Exploring Regional Variations in the Cross‐cultural, International Implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) Study. Abstract PB189. Res Pract Thromb Haemost, 2: 1-368. doi:10.1002/rth2.12125

 

 

International Society on Thrombosis & Haemophilia (ISTH, SSC) 2018regeg

Poster # PB162

THE EFFECT OF INHIBITORS ON QUALITY OF LIFE AND PAIN IN ADULT PATIENTS WITH SEVERE HAEMOPHILIA IN THE PROBE COHORT

Citation:

D. Noone; C. Chai‐Adisaksopha; R. Curtis; N. Frick; M. Nichol; B. O'Mahony; D. Page; J. Stonebraker; A. Iorio; M.W. Skinner; PROBE (2018), The Effect of Inhibitors on Quality of Life and Pain in Adult Patients with Severe Haemophilia in the PROBE Cohort. Abstract PB162. Res Pract Thromb Haemost, 2: 1-368. doi:10.1002/rth2.12125

 

 

European Conference of Rare Diseases & Orphan Products (ECRD) 2018werwertret

Poster # P103

THE EFFECT OF HAEMOPHILIA ON ACTIVITIES OF DAILY LIVING (ADL): PROBE COHORT

Citation:

D. Noone, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O’Mahony, D. Page, J. Stonebraker, A. Iorio, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). The effect of haemophiliia on activities of daily living (ADL): PROBE cohort. Poster Presentation # P103. The European Conference on Rare Disease & Orphan Products 2018.

 

 

World Federation of Hemophilia Congress (WFH) 2018

Oral Presentation: # T-FP-MTD-001 (181) (TBA)

THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY PHASE 1 METHODOLOGY AND FEASIBILITY RESULTS

Citation:

A. Dougall, S. Chandra Pani, B. Daly, C. Chai-Adisaksopha, R. Curtis, N. Frick, A. Iorio, D. Noone, J. Stonebreaker, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). The PROBE Study – Global burden of bleeding from the mouth in Haemophilia – a call to action. 14-Oral Health Presentation. World Federation of Hemophilia World Congress 2018. Haemophilia, 24: 106–196 (2018). doi: 10.1111/hae.13478

 

 

World Federation of Hemophilia Congress (WFH) 2018wfh2018

Poster # M-P-172 (258)

THE PROBE DATA DASHBOARD - A NEW TOOL FOR REAL-TIME DATA VISUALIZATION AND ANALYSIS OF PATIENT REPORTED OUTCOMES

Citation:

A. Pastarnak, R. Curtis, N. Frick, A. Iorio, M. Nichol, D. Noone, B. O’Mahony, D. Page, J. Stonebraker, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). TThe PROBE Data Dashboard – A new tool for real‐time data visualization and analysis of patient reported outcomes. Moderated Poster Presentation (172 MP). World Federation of Hemophilia World Congress 2018. Haemophilia, 24: 116–196 (2018). doi: 10.1111/hae.13478

 

 

European Association for Haemophilia and Allied Disorders (EAHAD) 2018

Oral Presentation #OR07

OCCURRENCE AND IMPACT OF PAIN AMONG PATIENTS LIVING WITH HEMOPHILIA: AN ANALYSIS FROM THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

D. Noone, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio, M. W. Skinner, on behalf of Patient Reported Outcomes Burdens and Experiences (PROBE) Investigator Group, Occurrence and impact of pain among patients living with hemophilia: An analysis from the patient reported outcomes, burdens and experiences (PROBE) study, (2018), Oral Presentations (OR7). Haemophilia, 24: 23–31. doi:10.1111/hae.13392