Abstracts

Last updated June 2018

 

NHF Bleeding Disorder Conference (BDC) 2018

Poster Abstract: # QLO 076

IMPACT OF HEMOPHILIA ON EMPLOYMENT - INSIGHTS FROM THE PROBE STUDY

Citation:

Mark Skinner, JD, Chatree Chai-Adisaksopha, MD, Randall Curtis, MBA, Alfonso Iorio, MD Ph.D. FRCP, Michael Nichol, Ph.D., Declan Noone, MEng, Brian O'Mahony, David Page, Alexandra Pastarnak, Jeff Stonebraker, Ph.D. (2018), Impact of hemophilia on employment - Insights from the PROBE Study, Abstract QLO 076. National Hemophilia Foundation 2018 Bleeding Disorder Conference

For Abstract Click HERE QLO 076

 

International Society on Thrombosis & Haemophilia (ISTH, SSC) 2018

Poster Abstract: # PB189

EXPLORING REGIONAL VARIATIONS IN THE CROSS-CULTURAL, INTERNATIONAL IMPLEMENTATION OF THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

C. Chai‐Adisaksopha; D. Noone; R. Curtis; N. Frick; M. Nichol; B. O'Mahony; D. Page; J. Stonebraker; A. Iorio; M.W. Skinner; PROBE (2018). Exploring Regional Variations in the Cross‐cultural, International Implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) Study. Abstract PB189. Res Pract Thromb Haemost, 2: 1-368. doi:10.1002/rth2.12125

For Abstract Click HERE PB189

 

International Society on Thrombosis & Haemophilia (ISTH, SSC) 2018

Poster Abstract: # PB162

THE EFFECT OF INHIBITORS ON QUALITY OF LIFE AND PAIN IN ADULT PATIENTS WITH SEVERE HAEMOPHILIA IN THE PROBE COHORT

Citation:

D. Noone; C. Chai‐Adisaksopha; R. Curtis; N. Frick; M. Nichol; B. O'Mahony; D. Page; J. Stonebraker; A. Iorio; M.W. Skinner; PROBE (2018), The Effect of Inhibitors on Quality of Life and Pain in Adult Patients with Severe Haemophilia in the PROBE Cohort. Abstract PB162. Res Pract Thromb Haemost, 2: 1-368. doi:10.1002/rth2.12125

For Abstract Click HERE PB162

 

World Federation of Hemophilia (WFH) 2018

Oral Presentation: # T-FP-MTD-001 (181)

THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY PHASE 1 METHODOLOGY AND FEASIBILITY RESULTS

Citation:

A. Dougall, S. Chandra Pani, B. Daly, C. Chai-Adisaksopha, R. Curtis, N. Frick, A. Iorio, D. Noone, J. Stonebreaker, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). The PROBE Study – Global burden of bleeding from the mouth in Haemophilia – a call to action. 14-Oral Health Presentation. World Federation of Hemophilia World Congress 2018. Haemophilia, 24: 3–196 (2018). doi: 10.1111/hae.13478

For Abstract Click HERE 

 

World Federation of Hemophilia (WFH) 2018

Abstract: # M-P-172 (258)

THE PROBE DATA DASHBOARD - A NEW TOOL FOR REAL-TIME DATA VISUALIZATION AND ANALYSIS OF PATIENT REPORTED OUTCOMES

Citation:

A. Pastarnak, R. Curtis, N. Frick, A. Iorio, M. Nichol, D. Noone, B. O’Mahony, D. Page, J. Stonebraker, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). TThe PROBE Data Dashboard – A new tool for real‐time data visualization and analysis of patient reported outcomes. Moderated Poster Presentation (172 MP). World Federation of Hemophilia World Congress 2018. Haemophilia, 24: 3–196 (2018). doi: 10.1111/hae.13478

For Abstract Click HERE 

 

European Association for Haemophilia and Allied Disorders (EAHAD) 2018

Abstract #EAHAD18-ABS-1170

OCCURRENCE AND IMPACT OF PAIN AMONG PATIENTS LIVING WITH HEMOPHILIA: AN ANALYSIS FROM THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation: D. Noone, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio, M. W. Skinner, on behalf of Patient Reported Outcomes Burdens and Experiences (PROBE) Investigator Group, Occurrence and impact of pain among patients living with hemophilia: An analysis from the patient reported outcomes, burdens and experiences (PROBE) study, (2018), Oral Presentations (OR7). Haemophilia, 24: 23–31. doi:10.1111/hae.13392

For Abstract Click: HERE (OR07)