Publications

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Original Publications in Peer-Reviewed Journals

User-Centered Development and Testing of the Online Patient-Reported Outcomes, Burdens, and Experiences (PROBE) Survey and the myPROBE App and Integration With the Canadian Bleeding Disorder Registry: Mixed Methods Study

Germini F, Borg Debono V, Page D, Zuk V, Kucher A, Cotoi C, Hobson N, Sevestre M, Skinner MW, Iorio A, PROBE Investigators. JMIR Hum Factors. 2022;9(1):e30797. https://doi.org/10.2196/30797


Evaluation of the sexual health in people living with hemophilia

Germini, F, Chai-Adisaksopha, C, Pete, D, Curtis, R, Frick, N, Nichol, M, Noone, D, O’Mahony, B, Page, D, Stonebraker, J, Thabane, L, Crowther, M, Skinner, M, Iorio, A. Haemophilia. 2021;27:993-1001. https://doi.org/10.1111/hae.14410


Non-severe haemophilia: Is it benign? – Insights from the PROBE study

Chai-Adisaksopha C, Noone D, Curtis R, Frick N, Nichol M, Germini F, O’Mahony B, Page D, Stonebraker J, Skinner M, Iorio A. Haemophilia. 2021;27(Suppl.1):17– 24. https://doi.org/10.1111/hae.14105


Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

Chai‐Adisaksopha, C, Skinner, MW, Curtis, R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Haemophilia. 2019;25:365–372. https://doi.org/10.1111/hae.13703


Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains

Chai‐Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther MA, Iorio A. Haemophilia. 2019;25:75–83. https://doi.org/10.1111/hae.13649


Psychometric properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire

Chai-Adisaksopha C, Skinner MW, Curtis R, Frick N, Nichol MB, Noone D, O’Mahony B, Page D, Stonebraker J, Thabane L, Crowther M, Iorio A. BMJ Open. 2018;8:e021900. http://dx.doi.org/10.1136/bmjopen-2018-021900


The Patient Reported Outcomes, Burdens and Experiences (PROBE) Project: development and evaluation of a questionnaire assessing patient reported outcomes in people with haemophilia

Skinner MW, Chai-Adisaksopha C, Curtis R, Frick N, Nichol M, Noone D, O’Mahony B, Page D, Stonebraker JS, Iorio A. Pilot and Feasibility Studies. 2018;4:58. doi: 10.1186/s40814-018-0253-0.