Publications - 2017

 

Abstracts

American Society of Hematology (ASH) 2017

Abstract # 5645

PSYCHOMETRIC PROPERTIES OF THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) QUESTIONNAIRE

Citation:

For Abstract Click HERE

American Society of Hematology (ASH) 2017

Abstract # 3411

BURDEN OF COMORBID DISEASES IN PATIENTS WITH HEMOPHILIA: THE CROSS-SECTIONAL ANALYSIS OF THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

For Abstract Click HERE

American Society of Hematology (ASH) 2017

Abstract # 2141

SEXUAL HEALTH IN PATIENTS WITH HEMOPHILIA: THE INSIGHTS FROM THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

For Abstract Click HERE

National Hemophilia Foundation (NHF) 2017

Abstract # 011

PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY DATA VISUALIZATION AND ANALYSIS

Citation:

A. Pastarnak, W. Skinner, R. Curtis, N. Frick, A. Iorio, M. Nichol, D. Noone, B. O’Mahony, D. Page, J. Stonebraker on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2016). Patient Reported Outcomes, Burdens and Experiences (PROBE) Study Data Visualization and Analysis (P011)

For Abstract Click HERE

International Society on Thrombosis & Haemophilia (ISTH, SSC) 2017

Abstract # PB 1985

BURDEN OF COMORBIDITIES IN PERSONS LIVING WITH HEAMOPHILIA: INSIGHT FROM THE PROBE PHASE 2b STUDY DATABASE

Citation:

M. Skinner, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio (2017). Burden of comorbidities in persons living with haemophilia: insight from the PROBE phase 2b study database. International Society on Thrombosis & Haemophilia (ISTH, SSC) 2017. Abstract # PB 1985. The DOI for all posters in the virtual gallery is: 10.3252/pso.eu.ISTH2017.2017.

For Abstract in press Click HERE (Page 840)

 

Health Technology Assessment international (HTAi) 2017

Vignette Presentation Abstract # PO37

TEST-RETEST RELIABILITY ANALYSIS OF THE PROBE STUDY QUESTIONNAIRE

Citation:

C. Chai-Adisaksopha on behalf of PROBE Investigators, A. Iorio, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, M. W. Skinner (2017). Test-Retest Realibility Analysis of the PROBE study questionnaire. http://onlinelibrary.wiley.com/doi/10.1111/hae.13150/full

For Abstract in press Click HERE

 

European Association for Haemophilia and Allied Disorders (EAHAD) 2017

Abstract #EAHAD17-ABS-1088

TEST - RETEST RELIABILITY ANALYSIS OF THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

C. Chai-Adisaksopha on behalf of PROBE Investigators, A. Iorio, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, M. W. Skinner (2017). Test-Retest Reliability Analysis of The Patient Reported Outcomes Burdens and Experiences (PROBE) Study. European Association for Haemophilia and Allied Disorders (EAHAD). Poster Presentations (PO37) Haemophilia, 23: 29–140. doi:10.1111/hae.13150

For Abstract Click HERE

 

 

 

Posters and Oral Presentations

American Society of Hematology (ASH) 201712345

Poster# 2141

SEXUAL HEALTH IN PATIENTS WITH HEMOPHILIA: THE INSIGHTS FROM THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

M. Skinner, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio. Burden of Comorbid Diseases in Patients with Hemophilia: The Cross-Sectional Analysis of the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study. Poster Presentation # 3411 at the American Society of Hematology Annual meeting (ASH 2017)

 

American Society of Hematology (ASH) 2017789654

Poster# 3411

BURDEN OF COMORBID DISEASES IN PATIENTS WITH HEMOPHILIA: THE CROSS-SECTIONAL ANALYSIS OF THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

M. Skinner, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio. Burden of Comorbid Diseases in Patients with Hemophilia: The Cross-Sectional Analysis of the Patient Reported Outcomes, Burdens and Experiences (PROBE) Study. Poster Presentation # 3411 at the American Society of Hematology Annual meeting (ASH 2017)

 

National Hemophilia FoundationBHDFJHGER (NHF)2017

Poster# P011

PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY DATA VISUALIZATION AND ANALYSIS

Citation:

A. Pastarnak, R. Curtis, N. Frick, A. Iorio, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, M. Skinner. Patient Reported Outcomes, Burdens and Experiences (PROBE) Study Data Visualization and Analysis. Poster Presentation # P011 at the National Hemophilia Foundation Annual meeting (NHF 2017)

 

International Society on Thrombosis & Haemophilia (ISTH, SSC) 2017dgjhdfugfhuli

Abstract # PB 1985

BURDEN OF COMORBIDITIES IN PERSONS LIVING WITH HEAMOPHILIA: INSIGHT FROM THE PROBE PHASE 2b STUDY DATABASE

Citation:

M. Skinner, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio (2017). Burden of comorbidities in persons living with haemophilia: insight from the PROBE phase 2b study database. International Society on Thrombosis & Haemophilia (ISTH, SSC) 2017. Abstract # PB 1985. The DOI for all posters in the virtual gallery is: 10.3252/pso.eu.ISTH2017.2017.

 

Health Technology Assessment international (HTAi) 2017htai 2017

Vignette Presentation #60

TEST-RETEST RELIABILITY ANALYSIS OF THE PROBE STUDY QUESTIONNAIRE

Citation:

C. Chai-Adisaksopha on behalf of PROBE Investigators, A. Iorio, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, M. W. Skinner (2017). Test-Retest Realibility Analysis of the PROBE study questionnaire.

 

Poster #PO03

European Association for Haemophilia and Allied Disorders (EAHAD) 2017

Poster #PO37

TEST-RETEST RELIABILITY ANALYSIS OF THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY

Citation:

C. Chai-Adisaksopha on behalf of PROBE Investigators, A. Iorio, R. Curtis, N. Frick, M. Nichol, D. Noone, B. O'Mahony, D. Page, J. Stonebraker, M. W. Skinner (2017). Test-Retest Reliability Analysis of The Patient Reported Outcomes Burdens and Experiences (PROBE) Study. European Association for Haemophilia and Allied Disorders (EAHAD). Poster Presentations (PO37) Haemophilia, 23: 29–140. doi:10.1111/hae.1315hilia, 22: 19–111 (2016). doi: 10.1111/hae.1_

 

 

 

Other Publications

Hemophilia Today: Newsmagazine of the Canadian Hemophilia Society - March 2017

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Patient Reported Outcomes, Burdens and Experiences (PROBE) survey validated

Do people with hemophilia have a harder time finding full-time work? Are they less well-educated? Or better education? How do care and treatment affect their quality of life? What is chronic pain's impact? Surprisingly, there is a lack of solid data answering such questions.