Abstracts

Last updated June 2018

 

World Federation of Hemophilia (WFH) 2018

Oral Presentation: # T-FP-MTD-001 (181)

THE PATIENT REPORTED OUTCOMES BURDENS AND EXPERIENCES (PROBE) STUDY PHASE 1 METHODOLOGY AND FEASIBILITY RESULTS

Citation:

A. Dougall, S. Chandra Pani, B. Daly, C. Chai-Adisaksopha, R. Curtis, N. Frick, A. Iorio, D. Noone, J. Stonebreaker, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). The PROBE Study – Global burden of bleeding from the mouth in Haemophilia – a call to action. 14-Oral Health Presentation. World Federation of Hemophilia World Congress 2018. Haemophilia, 24: 3–196 (2018). doi: 10.1111/hae.13478

For Abstract Click HERE 

 

World Federation of Hemophilia (WFH) 2018

Abstract: # M-P-172 (258)

THE PROBE DATA DASHBOARD - A NEW TOOL FOR REAL-TIME DATA VISUALIZATION AND ANALYSIS OF PATIENT REPORTED OUTCOMES

Citation:

A. Pastarnak, R. Curtis, N. Frick, A. Iorio, M. Nichol, D. Noone, B. O’Mahony, D. Page, J. Stonebraker, M. W. Skinner on behalf of the Patient Reported Outcomes, Burdens, and Experiences (PROBE) Investigator Group (2018). TThe PROBE Data Dashboard – A new tool for real‐time data visualization and analysis of patient reported outcomes. Moderated Poster Presentation (172 MP). World Federation of Hemophilia World Congress 2018. Haemophilia, 24: 3–196 (2018). doi: 10.1111/hae.13478

For Abstract Click HERE 

 

European Association for Haemophilia and Allied Disorders (EAHAD) 2018

Abstract #EAHAD18-ABS-1170

OCCURRENCE AND IMPACT OF PAIN AMONG PATIENTS LIVING WITH HEMOPHILIA: AN ANALYSIS FROM THE PATIENT REPORTED OUTCOMES, BURDENS AND EXPERIENCES (PROBE) STUDY

Citation: D. Noone, C. Chai-Adisaksopha, R. Curtis, N. Frick, M. Nichol, B. O'Mahony, D. Page, J. Stonebraker, A. Iorio, M. W. Skinner, on behalf of Patient Reported Outcomes Burdens and Experiences (PROBE) Investigator Group, Occurrence and impact of pain among patients living with hemophilia: An analysis from the patient reported outcomes, burdens and experiences (PROBE) study, (2018), Oral Presentations (OR7). Haemophilia, 24: 23–31. doi:10.1111/hae.13392

For Abstract Click: HERE (OR07)